Essence Magazine
ESSENCE MAGAZINE | NEW YORK, NEW YORKSEPTEMBER 11, 2011.
Once considered a death sentence, sickle cell disease has had a promising medical breakthrough. ESSENCE MAGAZINE reports on the cure researchers have been waiting for, dangerous myths associated with the disease and risks of just being a career. http://cstx.wish.org/wp-content/blogs/115/uploads//essence.pdf
...................................................................................................
Cord Blood Registry
CORD BLOOD REGISTRY | SAN BRUNO, CALIFORNIASEPTEMBER 22, 2011
Cord Blood Registry® (CBR) wants to share a client's triumphant personal battle with the life-threatening disease and help create awareness for CBR's Designated Treatment Program®. This community service program is offered free of charge if a family member is diagnosed with a life threatening disease that is treatable with donor stem cells. Read more: http://blog.cordblood.com/archive/2011/09/22/a-sickle-cell-survivor-story-carol-mulumba.aspx
..................................................................................................
Umbilical cord blood still an enigma
SAN FRANCISCO EXAMINER | SAN FRANCISCO, CALIFORNIAJULY 24, 2011
Since birth, 10-year-old Carol Mulumba has been shuttled to and from emergency rooms and specialists, fighting a disease that can lead to blindness and organ failure. But now, according to the family, she's cured of sickle cell anemia, something traditionally thought impossible. er parents praise the wonders of a treatment using stem cells taken from her brother's umbilical cord blood as the gift that has given their daughter back a normal childhood. Read more at the San Francisco Examiner: http://www.sfexaminer.com/topics/carol-mulumba
...................................................................................................
At 8 Mariam delivers year old thanks Methodist Hospital physicians
METHODIST HEALTHCARE | SAN ANTONIO, TXOCTOBER 16, 2009
Carol Mulumba celebrated her first full year free from sickle cell anemia. Now 8 years old, Carol had a bone marrow transplant at Methodist Children's Hospital one year ago. Bone marrow donated by one of her brothers replaced Carol's bone marrow and is now producing normal red blood cells.
To thank Dr. Michael Grimley and the staff, Carol and her family paid a surprise visit this week with healthy fruit baskets and a violin performance from Carol, who is now free of the painful symptoms of the disease. http://sahealthblog.wordpress.com/2009/10/16/8-year-old-thanks-methodist-doctor-for-year-free-of-sickle-cell-anemia/
...................................................................................................
Sickle cell anaemia cure from sibling cord blood
CORD BANK | AUCKLAND, NEW ZEALANDA little girl suffering from sickle cell anaemia is now well and back at school following an umbilical cord blood stem cell transfusion from her brother.Since birth, American girl Carol Mulumba, now 10, had been shuttled to and from emergency rooms and specialists, fighting Sickle cell anaemia – an inherited abnormality of the blood that can lead to blindness and organ failure.
Hunting for a transplant match for their daughter, the Mulumbas scoured public cord blood banks around the country, but without luck.When Lukiah Mulumba became pregnant, the Cord Blood Registry offered to store her baby's cord blood for free as part of a programme it offers to some 3,500 close relatives of patients with diseases treatable by cord blood. http://www.cordbank.co.nz/research-developments/sickle-cell-anaemia-cure-from-sibling-cord-blood/
..................................................................................................
...................................................................................................
Bone marrow transplant cures S.A. girl's sickle cell anemia
KENT 5 NEWS STATION | SAN ANTONIO, TX
A
young San Antonio girl, Carol Mulumba has a second chance at life after a bone marrow transplant from her brother. Her family wants her story to give hope to others suffering from sickle cell anemia.
San Antonio is home to many stories of help and healing, including the story of 8-year-old Carol Mulumba. Carol was diagnosed with sickle cell anemia when she was only three days old. The disease creates oddly-shaped red blood cells that can lead to lack of oxygen, pain, kidney trouble, possible strokes and early death.
"I had no choice," said Capt. Lucky Mulumba, an Air Force nurse who is Carol's mother. "I had no choice. So I remember I was nervous and they said we have to give a bone marrow transplant to save her." http://www.kens5.com/archive/66462877.html
A Parent's Life Experience
CANDID INTERVIEW WITH "UGANDAN LINK" IN BOSTON
1 on 1 with Captain USAF Lukiah Nakabembe Mulumba
Uganda-American Sickle Cell Rescue Fund vows "To work towards the improvement of the general quality of life for people with sickle cell disease through treatment, fighting against the stigma associated with the disease, providing education and information on Sickle Cell disease management". http://www.ugandanlink.com/features/1-on-1-with-captain-usaf-lukiah-l.nakabembe-mulumba.html
.......................................................................................
The Pain, the Sacrifice, Joy unspeakable
Extracted from THE MONITOR | October 6, 2010
Carol Zawedde Mulumba in her 2nd year free of Sickle Cell Anaemia
When high school sweethearts Lukiah Nakabembe and Abdullah Mulumba moved to the US and started a life together, neither knew of any sickle cell disease sufferers in Mariam Carol Zawedde Mulumba is now 10 years old in her second full year free of sickle cell anaemia. their families. The sickle cell is an abnormal red blood cell that has a crescent shape and an abnormal form of haemoglobin.
Unknown to the Mulumbas, they were both carriers of the cell. This combination gives a
25 per cent chance of begetting a child who will suffer from sickle cell anaemia, a 25 per cent chance of a perfectly normal child, and a 50 per cent chance of getting a carrier. Three days after the birth of their first born daughter, Miriam, they were informed that she was a sickler. http://habarizanyumbani.jambonewspot.com/2010/10/06/the-pain-the-sacrifice-and-joy-unspeakable/
...................................................................................................
...................................................................................................
UGANDA Lacks Doctors with Blood disorder expertise
Adapted from the NEW VISION | JULY 26, 2010
Sickle Cell Activists Ask for Blood Doctors
The Government should invest in training medical experts specialised in blood diseases, sickle cell activists have said. Sickle cell anemia is an inherited blood disorder that causes pain, organ damage & early deathCaptain Lukiah Mulumba, the president of the Uganda-American Sickle Cell Rescue Fund, said Uganda does not have doctors specialised in blood disorders such as sickle cell anemia. Mulumba was speaking yesterday at Mulago Hospital during the opening exhibition of the Sickle Cell Education Week (July 26 to August 1) under the theme 'Destroying the sickle cell monster and bringing hope to those affected by the disease'.
Lukiah Mulumba, a Ugandan serving in the United States Air force, is involved in a campaign against the disease. Her daughter, Carol Mulumba, 9, was cured of sickle cell anemia two years ago through a bone marrow transplant in the US. http://allafrica.com/stories/201007270610.html.
..................................................................................................
We are honored to bring you a quarterly magazine: SICKLA. it will have a lot of rich information about Sickle Cell anemia, survival stories, treatment options and how to eliminate the disease through Bone Marrow Transplant and Cord blood transfusion.
- Sickle Cell Anemia Survival & Survivors
- Treatment options and Patient Care rules
- Modern Medical Technology & Techniques
Give generously to help UASCRF
